Over the course of the COVID-19 pandemic, there has been a high level of patient demand for information about COVID-19 and its impacts on the inflammatory bowel disease (IBD) community. IBD Partners and the Crohn's & Colitis Foundation conducted a series of focus groups early on in the pandemic (between August and October of 2020). Focus groups are a form of group interview and are particularly useful for exploring people's knowledge and experiences.

The goals of the study were to 1) better understand the experiences of IBD patients during the COVID-19 pandemic and 2) identify knowledge gaps about IBD and COVID-19 and preferred methods of accessing information in order to make informed decisions.

To our knowledge, this is the first focus group study about the COVID-19 pandemic and the IBD community. In each focus group, participants with IBD talked about different fears, concerns, and questions related to the pandemic. They also discussed how and when they like to receive new information.

The findings of this study show the importance of the patient voice when deciding what to research and how to share those research findings with the public.